Last week, I told you about our latest trip to CHOP GI. We left that appointment with a plan to start Aidan on a steroid, monitor him weekly for progress, and plan our next scope. The scope is scheduled for April 4th, Aidan's "I put you through surgery and must now re-buy your love" gift has been ordered, and we've been dosing him with Prednisolone for a week now. The thought was that he'd eat more, grow better, and life would be dandy.
Yeah - we're not exactly huge steroid fans around here. He's angry. He's sad. He's hungry. But he's still not eating.
A call to the GI gives us a new plan:
- Wean Aidan down from steroid (2ml per day this week)
- Call for status check on Monday morning
- Scope on 4/4
- Back to GI to review results and discuss next steps on 4/16
Reminder to self: everything we try that doesn't help gets us one step closing to finding the thing that does...
What we hoped we'd get:
What we actually got:
With a side of:
Yeah - we're not exactly huge steroid fans around here. He's angry. He's sad. He's hungry. But he's still not eating.
A call to the GI gives us a new plan:
- Wean Aidan down from steroid (2ml per day this week)
- Call for status check on Monday morning
- Scope on 4/4
- Back to GI to review results and discuss next steps on 4/16
Reminder to self: everything we try that doesn't help gets us one step closing to finding the thing that does...
Think Positive, Mama :)
Well that's a bummer! When did he turn into the Hulk? He was perfectly delightful on Saturday. Poor bug!
ReplyDeleteHe was pretty delightful on Saturday - he's generally good so long as he's busy - but he barely ate and was up screaming all night long :(
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