tag:blogger.com,1999:blog-4289467626085219850.post3853028770022513909..comments2024-01-11T12:36:30.065-05:00Comments on Aidan... With Eos: How goes the tube?Carolinehttp://www.blogger.com/profile/01012306959183181787noreply@blogger.comBlogger19125tag:blogger.com,1999:blog-4289467626085219850.post-25765464908128568092012-05-30T13:35:43.793-04:002012-05-30T13:35:43.793-04:00That's a great question. Obviously, I can onl...That's a great question. Obviously, I can only speak for us, but the calling him a tubie is (to me) a celebration of what he's overcoming. Additionally, I want this to be something he's proud of, not something he feels he needs to hide.<br /><br />I do see your point though, and it would probably be a good idea for me not to assume that other tube-fed children like to be called tubies without asking :)Carolinehttps://www.blogger.com/profile/01012306959183181787noreply@blogger.comtag:blogger.com,1999:blog-4289467626085219850.post-56035362877465871212012-05-30T13:26:48.428-04:002012-05-30T13:26:48.428-04:00Thanks for the support, Jenn. We're really lo...Thanks for the support, Jenn. We're really looking forward to being done with this whole thing.Carolinehttps://www.blogger.com/profile/01012306959183181787noreply@blogger.comtag:blogger.com,1999:blog-4289467626085219850.post-33372171613883870262012-05-29T22:50:32.238-04:002012-05-29T22:50:32.238-04:00What a journey for you guys. You're all very b...What a journey for you guys. You're all very brave and you're such a good advocate for your boy. I have a ? Though. Why call kids with tubes 'tubies'? I've seen this several places and it seems to have the opposite effect that a parent of a child with a tube would want - it defines the child by how he/she eats and focuses solely on the tube. Just curious. Best of luck with Aiden's health.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4289467626085219850.post-42770716540738820772012-05-24T21:56:14.252-04:002012-05-24T21:56:14.252-04:00So glad to hear that he is doing well! We all like...So glad to hear that he is doing well! We all like to be full, and Aidan definitely isn't any different. Props once again to you and Tom and ALL of your helpers for doing such an amazing job with him!!! And also to Aidan for being such a cooperative little guy :)Jennifer @ Polliwog in a Bloghttps://www.blogger.com/profile/04621409087415897887noreply@blogger.comtag:blogger.com,1999:blog-4289467626085219850.post-89188594042271065482012-05-24T18:26:30.504-04:002012-05-24T18:26:30.504-04:00Great questions, Carrie! Before we pump anything ...Great questions, Carrie! Before we pump anything in, ever, we withdraw some liquid from the tube with a syringe and test the pH. Certain pH's indicate that we're in the stomach, while others are indicative of being elsewhere (like the lungs).<br /><br />There are diagrams online regarding how to measure, but basically you use his body to help measure (externally) how deep the tube needs to go, then mark the spot with a sharpie that should rest right outside his nose once it's fully inserted. <br /><br />It sounds a little daunting, but it really isn't that hard. :)Carolinehttps://www.blogger.com/profile/01012306959183181787noreply@blogger.comtag:blogger.com,1999:blog-4289467626085219850.post-14261848250233115772012-05-24T18:24:51.149-04:002012-05-24T18:24:51.149-04:00That always warms my heart. Kids are curious, but...That always warms my heart. Kids are curious, but once their questions are answered, they get on with life. No judgment.Carolinehttps://www.blogger.com/profile/01012306959183181787noreply@blogger.comtag:blogger.com,1999:blog-4289467626085219850.post-15441515298436470862012-05-24T18:24:11.242-04:002012-05-24T18:24:11.242-04:00He's a character, all right. you can't ge...He's a character, all right. you can't get this kid down!Carolinehttps://www.blogger.com/profile/01012306959183181787noreply@blogger.comtag:blogger.com,1999:blog-4289467626085219850.post-38585538727639894262012-05-24T18:23:52.907-04:002012-05-24T18:23:52.907-04:00Thanks, Kayse!Thanks, Kayse!Carolinehttps://www.blogger.com/profile/01012306959183181787noreply@blogger.comtag:blogger.com,1999:blog-4289467626085219850.post-29405175265725867922012-05-24T18:23:26.762-04:002012-05-24T18:23:26.762-04:00Thanks, Daddy :)Thanks, Daddy :)Carolinehttps://www.blogger.com/profile/01012306959183181787noreply@blogger.comtag:blogger.com,1999:blog-4289467626085219850.post-34978152858583986322012-05-24T18:22:30.092-04:002012-05-24T18:22:30.092-04:00and I hear those jammies make him look like Ziggy ...and I hear those jammies make him look like Ziggy Stardust...Carolinehttps://www.blogger.com/profile/01012306959183181787noreply@blogger.comtag:blogger.com,1999:blog-4289467626085219850.post-54001745728837774732012-05-24T18:22:15.959-04:002012-05-24T18:22:15.959-04:00thank you, Heather :) I can't manage to be to...thank you, Heather :) I can't manage to be too happy with an empty tummy, myself :)Carolinehttps://www.blogger.com/profile/01012306959183181787noreply@blogger.comtag:blogger.com,1999:blog-4289467626085219850.post-71350760565334559332012-05-24T15:11:38.011-04:002012-05-24T15:11:38.011-04:00I love that he can tell you when his tummy is full...I love that he can tell you when his tummy is full! So cute. I'm wondering how you know if the tube is going in the right way. How do you know if it's in his tummy (and not his lungs?)? And how to you know how far it needs to go in. Just curious! I'm glad he does so well with it. I think a lot of the issue with grown-ups is that we are too shy to ask and to quick to assume the worst.Carriehttp://www.thingstodofamily.comnoreply@blogger.comtag:blogger.com,1999:blog-4289467626085219850.post-51713919671856709772012-05-24T14:16:45.391-04:002012-05-24T14:16:45.391-04:00It 's amazing how resilient kids can be. They ...It 's amazing how resilient kids can be. They get through things with a smile on their cute face... things that most adults wouldn't be able to handle. I'm glad that other children are receptive to it. When our little man had to wear a cranial band I found that to also be the case. Kids are blunt, but give them the honest answer and it's like, "Okay, cool" and they are off. I definitely agree with you, adults are a whole other story!!Brianahttps://www.blogger.com/profile/16822510896089801905noreply@blogger.comtag:blogger.com,1999:blog-4289467626085219850.post-31441439665018230022012-05-24T11:34:26.931-04:002012-05-24T11:34:26.931-04:00The kids are awesome with it, and he's still t...The kids are awesome with it, and he's still the same silly boy...i was with him for a couple days last week and he still loves a good ticklefest <3Wendy Allebornnoreply@blogger.comtag:blogger.com,1999:blog-4289467626085219850.post-32299480132277500402012-05-24T10:17:02.530-04:002012-05-24T10:17:02.530-04:00What a cutie you've got on your hands! You guy...What a cutie you've got on your hands! You guys are doing such a great job with him - he is lucky to have such devoted parents. :)Kayse Pratthttps://www.blogger.com/profile/09655317444302757695noreply@blogger.comtag:blogger.com,1999:blog-4289467626085219850.post-33289547892513891172012-05-24T10:02:21.492-04:002012-05-24T10:02:21.492-04:00It helps that he has such a wonderful mommy to mak...It helps that he has such a wonderful mommy to make sure his tubie works just fine. :)BigDaddy424https://www.blogger.com/profile/05067860079212633924noreply@blogger.comtag:blogger.com,1999:blog-4289467626085219850.post-14759581351797803372012-05-24T09:44:56.910-04:002012-05-24T09:44:56.910-04:00He handles it like a champ but of course he would....He handles it like a champ but of course he would...that's our boy.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4289467626085219850.post-41552981795656165632012-05-24T09:35:58.173-04:002012-05-24T09:35:58.173-04:00I'm so glad to know he is handling it well. Ha...I'm so glad to know he is handling it well. Having a nice full belly is a nice feeling for him, I'm sure. I always like my belly full! He is so sweet and adorable.Anonymoushttps://www.blogger.com/profile/11052257274186506816noreply@blogger.comtag:blogger.com,1999:blog-4289467626085219850.post-76148189096445136142012-05-24T08:08:56.599-04:002012-05-24T08:08:56.599-04:00I'm glad he's having a better time with it...I'm glad he's having a better time with it. Good luck with the G tube!Melissahttps://www.blogger.com/profile/03965378457713154660noreply@blogger.com